Hello and welcome to the Long COVID Support Community! We are so pleased to have you here. My name is Eve, and I am part of the team that runs Long COVID Support. I have not got Long COVID personally, but do know a few people who are experiencing Long COVID. I think it’s important to acknowledge what a difficult condition it is, not only because of the large range of affects it has on people’s bodies, but also the unknown nature of it and how isolating it can be. We hope that by creating this community we can help take away some uncertainty and help connect people. Please introduce yourself so that we can start getting to know you.
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Hi, my name is Amanda and I caught covid last year. 3 weeks later I had increasing weakness in my legs and major fatigue the Monday may 15 my hubby had to call an ambulance as I was paralyzed from the neck down, what followed was a 7 1/2 week hospital stay, every possible test known to man and a final decision of rhabdo myositis because of Covid. Now I have long COVID and while my mobility isn’t the best I can get around with a cane but my fine motor skills are good one day and bad the next but my major annoyance is my balance and the motor skills and the muscle twitches all day and night