Hi Belinda. Nice to e-meet you. Sorry to hear you've had that experience. I agree it's frustrating when people reduce it to being like a cold or even flu. I'm still fatigued 6 months on and the brain fog is only just beginning to lift. It has so many impacts across so many areas of life. I hope you're coping ok and start feeling better soon!

Thanks for your support. I have emailed my comments. There is little acknowledgement of the debilitating effects of LC, and the need for support when you have to stay at home to manage symptoms. Also i'm told effects can include organ damage, hearts problems, etc and i don't know what to do about it and neither do others i've spoken to.

I agree. I struggle with lights. I found taking regular breaks and turning lights off helped.

Hi everyone I caught covid around May and have had symptoms ever since. The cold-like symptoms cleared quickly, but I’ve been stuck with ‘brain fog’ and fatigue. I didn’t fully appreciate what COVID ‘brain fog’ is until having had it myself. It’s truly debilitating. It impeded my ability to converse, to work, to think, and – at its worse – to speak coherently. One thing I found particularly frustrating was people not believing ‘long covid’ is real and/or understanding what long covid is, and particularly not understanding why I had only limited energy and capacity each day. I’ve found it has improved with time, just *very* gradually. If someone said “how are you feeling” and it was two days after having asked the first time, I invariably felt exactly the same. But if they asked a week or two later, I probably felt ever so slightly better. I do wonder about the broader long-term effects, too. It’s great to be a part of a community where people “get it.” I hope more broadly that as a society that though research, we find out more about it, including how to mitigate its impacts.