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Hi, I got Covid the 2nd time in Oct 2022. I'm still having trouble with fatigue and heart palpitations. When does it end?
In I have Long COVID
Not cured but some of these things may help you as they did for me
In I have Long COVID
Introduce yourself
In I have Long COVID
Alex
Nov 28, 2023
Hi there : ) I understand. I've had LC since 2022 and was bedbound for around 6 months, then housebound since. I also had to leave work and am only just starting to pick up a little paid work now (we'll see how it goes). This community isn't very active (I think people aren't familiar with the platform), but there is an active Facebook group at https://m.facebook.com/groups/301101014574843/ There are also various international support groups on various platforms (Facebook, Discord etc). I have had a good experience with medical treatment from Clinic 19, a private group of specialists focusing on LC. A lot of people on the Facebook group are trying them. They diagnosed me with post-viral POTS (a type of dysautonomia) and suggested some simple things that really help. They also put me on LDN for the severe fatigue and other issues. That has really worked for me, so I'm lucky there. Although I'm still not well, my quality of life has improved substantially. There is a long wait list but it's worth a try https://clinicnineteen.com.au/about-us You aren't alone and there is lots of good advice out there when you start connecting with patient groups. We are all tracking the research pretty closely and there is a lot of new information coming through all the time. Thank you for your health care work at the height of the pandemic in 2020. That was a scary time and everyone who understands COVID is immensely grateful. It may have disappeared from the public view a bit, but there are many many people who have been affected and who understand how very serious this is. Everyone in the LC community will understand all the challenges you describe as they are shared by so many of us. We understand the challenge of just attending to daily life, and I would like to congratulate you on being able to achieve what you do while feeling like garbage.
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Introduce yourself
In I have Long COVID

Alex

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